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Deborah Ann Woll seeks awareness and funding to fight Choroideremia

Media Planet recently put together a special pull-out section for USA Today titled “Vision & Hearing News”. Part of this special pull-out featured an interview with EJ’s girlfriend and actress Deborah Ann Woll, one of the stars of HBO’s “True Blood”. Deborah talked about her relationship with EJ Scott and their efforts to bring awareness

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Additional Ways to help fight Choroideremia via Amazon Smile

Published on April 4, 2014 by in Fundraising

Amazon.com has a new charity program called Amazon Smile that allows you to help fight Choroideremia. When you shop on Amazon.com, if you have designated the CRF as your charity in Amazon Smile, a portion of your purchase will be donated to the CRF! Here’s how it works: Go to http://smile.amazon.com and sign into your Amazon account.

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Fundraising for Choroideremia Lavaman Triathlon

Published on February 3, 2014 by in fundraisers

Jodi & Sean McLaughlin of Alaska and Sharyl & Danny Boren of Hawaii are training hard to compete in the Lavaman Triathlon, an Olympic distance triathlon consisting of 1.5K Swim, 40K Bike, and 10K Run on the Big Island of Hawaii. They are doing this to raise funds and awareness for the CRF and Choroideremia.

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Great Bargains at EJ’s Latest Auctions

Published on January 19, 2014 by in Auctions

CHECK OUT EJ LATEST AUCTIONS!  He has almost 100 auctions currently running on EBay for charity (benefiting The Choroideremia Research Foundation).  There are lot of comic books and True Blood memorabilia up for sale, so get on over and check out what he has to sell.  Below are just two examples of what you can

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Sue’s Dropping Calories to find a cure for Choroideremia

Published on January 14, 2014 by in Fundraising

Yesterday, we posted about Mark’s quest to lose 83 pounds to raise money for the Choroideremia Foundatoon.  Now, Sue has also promised to drop a few pounds to benefit the cause.   Read her story below: As you may notice by the pictures, I have put on a couple of pounds over the years. Okay,

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