Virginia Skeels of The Daily Mail.co.uk has written a lovely article about the EJ Scott’s efforts and what Deborah Ann Woll, his girlfriend has to say about it.
Below is a portion of that article:
As a beautiful young star with a role in a hit TV show, you might think Deborah Ann Woll lives a charmed life.
But the True Blood actress has revealed that her long-term boyfriend EJ Scott is battling an incurable disease which is turning him blind.
Deborah, who plays vampire Jessica in the show, shared his incredible story in an effort to raise awareness of the degenerative condition choroideremia.
EJ, the actress’s partner of nearly five years, was diagnosed with the disease when he was just 27 and will soon lose his sight completely.
Choroideremia is a degenerative disease that causes progressive loss of vision due to degeneration of the choroid and retina.
‘I hadn’t heard of the disease before I met E.J., and I was very moved by his story,’ says the 27-year-old actress, who met her boyfriend on an online dating site.
‘I thought that anyone who could have such struggle in his life and still be positive and motivated is a very special person.’
Scott had written about his condition to pre-inform potential dates.
‘I thought he was very brave to be so open about it,’ says Woll in the November issue of Men’s Fitness.
‘A lot of people put blindness on their list of worst fears,’ says Woll softly, as she looks at her boyfriend.
‘It’s on mine,’ he says.
source: cinemablend.com
Hi, I was watching Jeff Probst today and saw you and heard about your eye disease. I said that is what my granddaughter has. She is 21. She has tunnel vision now. She has had every eye test more than one time. To tell her story, two years ago she was hit in the top side of her head with a golf club. She had stitches and no test at the hospital. Six months later she started loosing her perphrial vision to now just tunnel vision. Her regular vision keeps changing. We live in Louisiana and just took her to another Dr. Lee in Houston. He said she has traumatic stress brain disorder from the hit on the head and her vision will never return. Not sure if that is it, we will see. I just wanted to tell you that people don’t know of such diseases, and people like you bring knowledge to all of us looking for answers. I wish you all the best. And I will add you to my prayer list. I hope they find cures for all eye disease. Thank you.