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EJ Podcast #014 with Ruth Thomas-Suh Director of “Reject”

Published on February 8, 2014 by in EJ Podcast

Below is the next “Scratch the Surface” EJ Podcast #014.

EJ has as his guest today Ruth Thomas-Suh who directed the documentary, “REJECT.”

EJ says: 

I saw the documentary last year at a film festival and was instantly drawn to it and the idea of “Rejection” and how that affects kids and even adults. I kept in contact with Ruth and asked her on my podcast to further talk about making the movie and its challenges, what made her want to make it, her inspiration from her father who was a psycologist in a prison, how are kids are being affected, “bullicide” (bullying that leads to suicide) and a lot more. And I include a podcast with my childhood best friend, Steven, who was teased and bullied quite a bit for most of his childhood, how he dealt with it and where he is now. Its a pretty powerful and sometimes intense discussion, sprinkled with lighter moments. 

Please share with your friends on social media or any other way.

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EJ with Ruth Thomas-Suh

Listen and Enjoy.

Also, Listen to EJ’s other podcasts because those are pretty amazing also.

 
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Say Happy Birthday to Deborah Ann Woll by giving to the CRF

Published on February 7, 2014 by in Give
Happy Birthday to EJ Scott’s girlfriend, Deborah Ann Woll!

 

Today is Deborah Ann Woll’s Birthday and to celebrate she would love it if you would consider making a donation to to her boyfriend’s charity, the Choroideremia Research Foundation.

ejdebpremiere

Donate to the The Choroideremia Foundation

by clicking on the button below:

 
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Fundraising for Choroideremia Lavaman Triathlon

Published on February 3, 2014 by in fundraisers

Jodi & Sean McLaughlin of Alaska and Sharyl & Danny Boren of Hawaii are training hard to compete in the Lavaman Triathlon, an Olympic distance triathlon consisting of 1.5K Swim, 40K Bike, and 10K Run on the Big Island of Hawaii. They are doing this to raise funds and awareness for the CRF and Choroideremia. Jodi’s brother and Danny are losing their sight due to the effects of CHM. Jodi, her mother, niece, and possibly her two daughters all carry the disease to pass on to future generations. For these two families, this is a personal fight to save their sight and the sight of their loved ones.

Sharyl and Danny Boren Jodi & Sean McLaughlin
Sharyl and Danny Boren Jodi & Sean McLaughlin

The McLaughlins, Borens and their friends and family members have decided to partner up in this venture because they know that blindness does not have to be the fate of people suffering from Choroideremia! Human trials for a genetic therapy are taking place in the UK and are expected to start in the USA this year. If successful, these trials will halt the progression towards blindness! In addition, research is already underway for various forms of replacement therapies which hold the promise of restoring the sight we have lost. Research does not come cheap, and this is where YOU come in! Show your support for the McLaughlins and the Borens by using the PayPal button below and making your gift to the Choroideremia Research Foundation today!

Mahalo nui loa for your kokua!
(Thank you very much for your support!)

Go over to Choroideremia Research Foundation web site to learn more.

 
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Rest in Peace Daniel Muller

Published on January 31, 2014 by in News

RIP Daniel Muller.

Daniel passed away the other day at only age 33. He had Choroideremia just like me. Choroideremia is a genetic degenerative eye disease that causes blindness.

The family has asked that people donate on his behalf to the Choroideremia Research Foundation.

If you can, please click here to make a donation in his memory,

or on the image below.

crf

Thank you.

EJ

 

 
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EJ Podcast #013 with Dr. Jean Bennett

EJ has as his guest on his “Scratch the Surface” podcast today, Dr. Jean Bennett, one of the few people in the United States, and in the world, who is working tirelessly to try to find a treatment or a cure for CHOROIDEREMIA.

EJ and Dr. Bennett talk about the potential for treatment, what that would take, time, money, the risks involved, where the hell this came from in the first place, how she got started in medicine at an early age and a lot more.

He hopes this podcast will inspire you to help out. There’s a big dollar amount we need to raise for a cure, but that amount many charities raise in less than a year.

Listen and Enjoy.

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Choroideremia is an eye disease that is passed down through genetics and degenerative until total blindness. Ej has it, his brother has it, and his two nephews have it. EJ has been raising awareness and money for the cause for over a decade when he first got diagnosed.

Please share with your friends on social media or any other way. Listen to EJ’s other podcasts because those are pretty amazing also.

 
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