Jodi & Sean McLaughlin of Alaska and Sharyl & Danny Boren of Hawaii are training hard to compete in the Lavaman Triathlon, an Olympic distance triathlon consisting of 1.5K Swim, 40K Bike, and 10K Run on the Big Island of Hawaii. They are doing this to raise funds and awareness for the CRF and Choroideremia. Jodi’s brother and Danny are losing their sight due to the effects of CHM. Jodi, her mother, niece, and possibly her two daughters all carry the disease to pass on to future generations. For these two families, this is a personal fight to save their sight and the sight of their loved ones.
|Sharyl and Danny Boren
|Jodi & Sean McLaughlin
- Coordinators: Jodi & Sean McLaughlin and Danny Boren
- Event Name: Lavaman Triathlon
- Event Location: Waikoloa Village, HI
- Event Date: March 30, 2014
- Website: www.lavamantriathlon.com/waikoloa/
The McLaughlins, Borens and their friends and family members have decided to partner up in this venture because they know that blindness does not have to be the fate of people suffering from Choroideremia! Human trials for a genetic therapy are taking place in the UK and are expected to start in the USA this year. If successful, these trials will halt the progression towards blindness! In addition, research is already underway for various forms of replacement therapies which hold the promise of restoring the sight we have lost. Research does not come cheap, and this is where YOU come in! Show your support for the McLaughlins and the Borens by using the PayPal button below and making your gift to the Choroideremia Research Foundation today!
“Mahalo nui loa for your kokua!”
(Thank you very much for your support!)