Upcoming Fundraisers for EJ’s Charity The Choroideremia Research Foundation

EJ Scott’s charity, The Choroideremia Research Foundation has some upcoming fundraisers that you might want to try out. The charity can always use your support so why not have some fun while helping a worthwhile cause by attending one of their events.



These upcoming fundraisers have been organized by CRF Members:


The Purvis Brothers’ Driving Blind Documentary Premier 2 Brothers, 1 vision … 0 sight  – 

With the prospect of losing their vision entirely, Tod and Justin Purvis have decided there are so many people/places/things in this country that they would like to see. Since Choroideremia starts with the peripheral vision, the brothers have decided to start with the peripheral states of America.

They circumnavigated the contiguous United States, seeing the great sights that make America beautiful and sharing their story along the way. They documented their entire 13,000-mile journey across the country on film in the hopes of raising awareness of Choroideremia and other degenerative eye diseases.

Join us for the east coast premiere of Tod and Justin’s amazing feature documentary. Presented by the WilmFilm Festival, Penn Cinema Riverfront in Wilmington, Delaware on April 27, 2013 at 4pm. Tickets are limited to 100 seats. Hurry! $50/ticket

Following the WilmFilm premiere of Driving Blind please join us at Ryan’s Wine (huge thanks to John Ryan!) for a tasting of some amazing wines. This will give us an opportunity to catch up, ask Tod and Justin Purvis a few questions, and spoil our taste buds with some big reds.

8th Annual Ostoberfest

On Sunday, May 19th beginning at 1 PM at the Roger Robach Community Center located at Ontario Beach Park, Greece, NY (Click here for the Park website) the Oster family is once again hosting Ostoberfest.

It’s an afternoon of food, music and fun… Mardi Gras Style! Join the Oster Family as they welcome New Orleans native and special guest emcee H. Eric Hartman for authentic New Orleans food, live Zydeco music and so much more@ It’s a Mardi Gras style party with a purpose. Please feel free to dress for the occasion.

Visit the Ostoberfest website at for more information on the event, how to be a sponsor and to purchase your tickets today!

First Annual Men’s Lacrosse Festival

Tom Driscoll ( and Tara Cassidy-Driscoll ( ask that you join them in supporting the First Annual Men’s Lacrosse Festival, “See by the Sea!” being held on Sunday, April 21, 2013. This inaugural festival is a benefit for the Choroideremia Research Foundation Inc. and will feature the following teams and games. In addition, there will be raffles, t-shirt sales, concessions, music and more! Become a Sponsor of this event!

 The event is being held at Endicott College Stadium located at 376 Halet Street, Beverly, MA 01915. Admission is FREE! The following games are part of the fundraiser:

  • Endicott College vs Nichols College – 1:00 pm to 3:00 pm
  • Swampscott HS vs Saugus HS – 3:30 pm to 5:30 pm
  • Marblehead HS vs Newburyport HS – 5:30 pm – 7:30 pm

Please show your support by clicking here to become a sponsor or to donate in support of “See by the Sea!”

Muses in the Vineyard benefit for Angels for Mark & the CRF

Muses in the Vineyard is a festival of music, of the women, by the women and for EVERYONE. Foul Rift Productions, Inc. is pleased to announce this years event is May 18, 2013 from 12:00 PM to 8:30 PM at Four Sisters Winery, 783 County Rte. 519, Belvidere, NJ 07823.

All net proceeds will be to the benefit of the local fundraising effort for “Angels for Mark” which actively works toward a cure for degenerative retinal diseases.

Click here for more information and to purchase tickets for this event.

Parrotthead Musical event also organized by Angels for Mark

On April 12th and 13th The Coastal Jersey PHC proudly presents the Midatlantic Parrothead Club Regional Meeting and Fundraiser Events to benefit the Choroideremia Research Foundation.

Click here for complete information on this event.

source: Choroideremia Research Foundation

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