Below is a fantastic new documentary short about Choroideremia and the research that is being done. It focuses on the inspiring strength of CHMers like Jeff Benelli and Danny Boren. Please watch! It’s only 20 minutes long. And please SHARE! I would love to see this get a lot of shares. This is the eye disease that is causing me (EJ), my brother Kevin Scott, and my nephews to go blind. Thank you to whoever made this. Or is it whomever? Thanks!!
“You are going Blind”, are words no one ever wants to hear, especially when the cause is a rare disease with no research funding. Saving Sight is the story of a small group impacted by a blinding disease who have taken matters into their own hands. Stubbornly refusing to give up hope, this small group has banded together and helped push medical breakthroughs that could benefit research into many diseases, and just might save the vision they have left.
Watch “Saving Sight” below: