In the interview below with Andrea Domanick at the LA Vegas Sun, EJ Scott reflects on his year of marathons, his disease and what it’s like to run blindfolded.

Read the interview below.

This afternoon, E.J. Scott will be among the thousands of runners at the starting line of the Rock ‘n’ Roll Las Vegas Marathon. The only difference is that he’ll be wearing a blindfold. Scott is going blind from a degenerative eye disease called Choroideremia and must protect his eyes from the sun to preserve what little vision he has left. To raise research funds and awareness, Scott has committed to running 12 marathons in 12 months, with today’s run marking his last one.

Scott reflected on the past year, his training and the challenges he has faced.

Are you looking forward to the marathons being over with, or is this bittersweet for you?

I’d say it’s more sweet than bitter. I’m very much looking forward to it being over. It’s so much harder than I thought it was gonna be, physically, mentally, emotionally. It’s been a rough year, but a really rewarding year, too.

I’m pretty proud of myself. I’m shocked I made it this far, really. People keep asking me what’s next, and I still can’t even think about what’s next. I’ve been taking it one marathon at a time, really. I’m just looking forward to a break and not planning a marathon for a while.

Why marathons? There have to be less-grueling ways to bring awareness and raise money.

I thought it was something I’d never do. I was very overweight and a smoker for a long time, really up until just a couple years ago. I’m 37, so I was well into my 30s until I made a decision to make a lifestyle change to be healthier. Marathoning was kind of a good excuse to exercise and watch what I eat and at the same time raise money for a cause and do something good.

So what is your strategy for running blindfolded? How do you do it?

I run with a guide. And that did change a little bit. I started out holding on to my guide’s arm the whole time, but my shoulders would get really, really sore. Around marathon No. 3 in March in L.A., I tried holding on to a towel. We each hold on to an end of a towel, and that would give us some breathing room, and that would help a lot. So I mostly do that, but I still hold on to the guide if I have to, if I need to make a sharp turn, or if it’s kind of dangerous or something like that.

What’s going through your head while you’re running? Are you hyper-aware of what’s around you or zoned out?

Audibly, it’s really overwhelming for me. It sounds like thousands of people being murdered by noisemakers. It’s so noisy, sometimes I can’t even hear my guide’s instructions. But I think a lot about my family; I have two little nephews and a brother who have (Choroideremia). The females in my family are carriers, so I think of them a lot. I think about my girlfriend and having a family with her someday and what it will be like for her and for us. I don’t have children yet, but I’d like to have some and interact with them visually and see what they do. So I’m trying to preserve what I’ve got as long as I can.

Have you ever fallen while running?

I’ve never fallen, but I’ve tripped and stumbled a ton, and I’ve run into a lot of people. There’s so many people out there, and everyone is just kind of in their own zones. So I’ve had people run in front of me and I trip right over them. Luckily, I’ve never fallen, and I don’t think I’ve actually knocked anybody down. But I’ve definitely shocked some people, and they’ve shocked me, running into each other.

What does this final race in Las Vegas mean to you?

This is a big deal. I can’t believe it’s here, really. I’m super excited but more and more nervous as it draws near. There are so many variables with this marathon. But as soon as the sun goes down, I can take my blindfold off, which I’ve never done before. I’m hoping that will help me rather than hurt me, but I am nervous that I’ll be disoriented. But I’m really looking forward to crossing the finish line and seeing the finish line.

I also heard Las Vegas’ own Steve Wynn has a degenerative eye disease. I’ve been trying to get ahold of him, but he’s not responding. I would’ve really liked to have met him and talked to him. He’s maybe the most high-profile person with a degenerative eye disease, so I hope he’ll get wind of me at some point. I’d even like to just thank him. He donates generously, so it’s good that he’s out there.

Please consider giving to EJ’s charity, The Choroideremia Foundation by donating using the button below:

Today EJ Scott ran his last marathon in 2012 in Las Vegas, Nevada. It’s been quite a year for EJ and he sure should be proud for having run a marathon a month this year.  Now that it’s over, tomorrow he will join his family and friends for the Long Island Fundraiser for E.J.’s Last Race on 12/02/12 at Whoville in Bethpage, New York.  

His persistence has paid off this year because the money that has been raised will be instrumental in getting that much closer to finding a cure for his disease, Choroideremia.

Congratulations EJ!

EJ Scott is in Las Vegas right now getting ready for his very last marathon of the year. This will be his 12th marathon in 2012 and he will have ran over 312 miles and raised, at this moment, over $90,000 for his charity Choroideremia.

He dropped by the Sands Expo and Convention Center in Las Vegas on Friday and picked up his race number like anybody else, but probably be the only one running the Rock ‘n’ Roll Las Vegas Marathon blindfolded.

“It can really test a person,” Scott said. “It can test a family. Find out what you’re made of. I’m stronger than I thought I was.“

Scott isn’t talking about the marathons he’s run. Instead, he’s talking about the disease he was diagnosed with 10 years ago.

“It’s called choroideremia and it’s a hereditary degenerative eye disease,” Scott said. “It attacks peripherally and erodes it over time to total blindness. I’m legally blind now.”

Scott weaved through the crowd at the convention center with the help of a cane and squinted to find his race number.

“I’m slowly going blind as time goes along,” he said. “So I use the cane to help me not bump into things as much and keep safe.”

He has run one marathon a month to raise money to fight the disease that afflicts him and many members of his family.

He said the thought of helping them is what drives him to leg out all those miles.

“Those miles are the hardest, so I’ll say, ‘This one’s for my nephew Liam,’ ‘This one’s for my nephew Aiden,’ ‘This one’s for my grandfather,’ ‘This one’s for my brother,’ and that helps me get through.”

When Scott crosses the finish line Sunday he’ll have logged over 312 miles and raised over $90,000 for his cause.

“It’s going to be great,” he said. “I’ve imagined it, but I can’t really grasp what it will be like finally finishing.”
source: 8 News NOW