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Upcoming Fundraisers for EJ’s Charity The Choroideremia Research Foundation

Published on March 27, 2013 by in Fundraising

EJ Scott’s charity, The Choroideremia Research Foundation has some upcoming fundraisers that you might want to try out. The charity can always use your support so why not have some fun while helping a worthwhile cause by attending one of their events.

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These upcoming fundraisers have been organized by CRF Members:

 

The Purvis Brothers’ Driving Blind Documentary Premier 2 Brothers, 1 vision … 0 sight  - 

With the prospect of losing their vision entirely, Tod and Justin Purvis have decided there are so many people/places/things in this country that they would like to see. Since Choroideremia starts with the peripheral vision, the brothers have decided to start with the peripheral states of America.

They circumnavigated the contiguous United States, seeing the great sights that make America beautiful and sharing their story along the way. They documented their entire 13,000-mile journey across the country on film in the hopes of raising awareness of Choroideremia and other degenerative eye diseases.

Join us for the east coast premiere of Tod and Justin’s amazing feature documentary. Presented by the WilmFilm Festival, Penn Cinema Riverfront in Wilmington, Delaware on April 27, 2013 at 4pm. Tickets are limited to 100 seats. Hurry! $50/ticket

Following the WilmFilm premiere of Driving Blind please join us at Ryan’s Wine (huge thanks to John Ryan!) for a tasting of some amazing wines. This will give us an opportunity to catch up, ask Tod and Justin Purvis a few questions, and spoil our taste buds with some big reds.

8th Annual Ostoberfest

On Sunday, May 19th beginning at 1 PM at the Roger Robach Community Center located at Ontario Beach Park, Greece, NY (Click here for the Park website) the Oster family is once again hosting Ostoberfest.

It’s an afternoon of food, music and fun… Mardi Gras Style! Join the Oster Family as they welcome New Orleans native and special guest emcee H. Eric Hartman for authentic New Orleans food, live Zydeco music and so much more@ It’s a Mardi Gras style party with a purpose. Please feel free to dress for the occasion.

Visit the Ostoberfest website at www.ostoberfest.com for more information on the event, how to be a sponsor and to purchase your tickets today!

First Annual Men’s Lacrosse Festival

Tom Driscoll (drisclaw@yahoo.com) and Tara Cassidy-Driscoll (tcassidy@cassidyins.com) ask that you join them in supporting the First Annual Men’s Lacrosse Festival, ”See by the Sea!” being held on Sunday, April 21, 2013. This inaugural festival is a benefit for the Choroideremia Research Foundation Inc. and will feature the following teams and games. In addition, there will be raffles, t-shirt sales, concessions, music and more! Become a Sponsor of this event!

 The event is being held at Endicott College Stadium located at 376 Halet Street, Beverly, MA 01915. Admission is FREE! The following games are part of the fundraiser:

  • Endicott College vs Nichols College - 1:00 pm to 3:00 pm
  • Swampscott HS vs Saugus HS - 3:30 pm to 5:30 pm
  • Marblehead HS vs Newburyport HS - 5:30 pm – 7:30 pm

Please show your support by clicking here to become a sponsor or to donate in support of “See by the Sea!”

Muses in the Vineyard benefit for Angels for Mark & the CRF

Muses in the Vineyard is a festival of music, of the women, by the women and for EVERYONE. Foul Rift Productions, Inc. is pleased to announce this years event is May 18, 2013 from 12:00 PM to 8:30 PM at Four Sisters Winery, 783 County Rte. 519, Belvidere, NJ 07823.

All net proceeds will be to the benefit of the local fundraising effort for “Angels for Mark” which actively works toward a cure for degenerative retinal diseases.

Click here for more information and to purchase tickets for this event.

Parrotthead Musical event also organized by Angels for Mark

On April 12th and 13th The Coastal Jersey PHC proudly presents the Midatlantic Parrothead Club Regional Meeting and Fundraiser Events to benefit the Choroideremia Research Foundation.

Click here for complete information on this event.

 
source: Choroideremia Research Foundation

 
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EJ Scott’s “outside the box fundraising” 3rd Marathon “Mad Men March”

Published on March 14, 2013 by in Fundraising

TV MARATHON for the CHOROIDEREMIA RESEARCH FOUNDATION

EJ Scott says:

I’m watching my third show in my marathon of TV viewing.  This time it’s “MAD MEN,” and I’m calling it “Mad Men March.”

My first two marathons went very well with “Homeland” and then “Game of Thrones.”  I’m huge fans of both now.  I’ve been dying to get into “Mad Men” and have seen the first episode or two a handful of times but never got further, so it’s my #3 marathon. 

Last year I ran 12 Marathons in 12 States in 12 Months. That’s a lot of work. I think most people would look at what I did and either get motivated to try something to help or the opposite. They might look at it like “I cant do that!” I used to watch BIGGEST LOSER and it was intimidating to watch these people break their asses. It made me not want to exercise or lose weight. It seemed too hard. Then I lost weight on my own a couple years ago and it wasn’t extreme and it was still healthy. It took 8 months to lose 70 lbs. and its a daily battle to keep my weight at a healthy level. Not because of my body but because of my mind. I still eat the wrong things sometimes and too much of it. Anyway, I lost weight and raised money for the foundation. I didn’t really think I would’ve been able to, but i did! It was pretty great!

So now I’m doing the total opposite of running. I’m sitting. For long periods of time watching great television. The idea is watching shows I never got into but wanted to get into. Its thinking outside the box fundraising. You don’t have to torture yourself. You can do something fun and get people involved. So please join me on Twitter @ejscott (i’ll be tweeting now and then) and give to my cause. We are still far from a cure and need funds for research.

March 2013 marks my 10 year anniversary of being diagnosed with CHOROIDEREMIA. So please donate, by clicking on the button below and help me get this thing cured before another 10 years goes by. Thank you.

 Donate using the button below:

 
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EJ Scott’s 2013 Marathons…? Sort of…

Published on January 29, 2013 by in Featured, Marathons

12HOURTV

EJ says:

2012 was all about me running and what was involved with that. i.e., planning fundraisers, traveling, training, eBay auctions, marathon running, recovery, etc. This year I want to get back to my creative roots i.e. again, writing, drawing, improv, and painting.

But I still want to see if I can raise money for Choroideremia Research that doesn’t involve me killing myself (not literally) with marathons. So this year I am doing marathons but not running marathons. TV show marathons! Thats right! Once a month I will choose a TV show that I haven’t watched that has at least 12 hours of content. I will watch 12 straight hours of that show. My girlfriend doesn’t think anyone will donate to this. I would like to prove her wrong.

I have rules and guidelines I must follow! You could read my blog to see more details. My first marathon begins tomorrow at 8:00am! Please donate to my cause at by clicking on the button below. Thank you so much and wish me luck!

What will I be watching first? HOMELAND!!! 12 hours of Homeland! Yes I have a lot of time on my hands and I love it :)

So far, my TV list includes the following shows:

  • The Wire
  • Sons of Anarchy
  • Battlestar Galactica
  • Boss
  • Justified
  • Mad Men
  • Dollhouse
  • Downton Abbey
  • Homeland

And we will see what other ones!

For now you can still donate by clicking on the button below and also please check out the auctions at my eBay page and tell your friends about the auctions. Thanks!!!

Please consider giving to EJ’s charity, The Choroideremia Foundation by donating using the button below:

 
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EJ Scott Receives Visionary Award at Los Angeles AllState Marathon

Published on January 14, 2013 by in Featured, Marathons, Press

Yesterday morning EJ Scott ran a very short race, only 5 miles. That’s easy for EJ because he already ran 12 full marathons in 2012. and blindfolded. The 5k run took place in Playa Del Rey, CA at the Allstate Los Angeles Marathon event.  He was supposed to run alongside his girlfriend, True Blood’s Deborah Ann Woll, as is guide.  Unfortunately, Deborah hurt her ankle and wasn’t able to run, so EJ ran with another guide and Deb stood at the sidelines cheering him on.

After the race, EJ received the first ever US Road Sports and Entertainment Group Visionary award given at this annual race in recognition of the tremendous effort he made this past year for having run 12 Marathons in 2012 and raising over $150,000 for his charity Choroideremia.

ejaward

 

Here’s a video of EJ receiving the award.

And here are some photos of EJ with the award and with his girlfriend, True Blood’s Jessica Hamby, Deborah Ann Woll.

Please consider giving to EJ’s charity, The Choroideremia Foundation by donating using the button below:

 
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EJ Scott Interviewed by ABC Channel 7 News

Published on January 14, 2013 by in Marathons, Press

Yesterday, Allstate Life Insurance marathon runners faced some tough conditions as cold temperatures in the race along the ocean. EJ Scott ran a 5K run during the event which ended in Playa Del Rey, California. 

After the race EJ was interviewed by ABC Channel 7 news. Below is the interview:

 
 
 

 

source: abclocal.go.com

 
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